All of this sets depression and anxiety, but you can't even cry because something like crying will set off the worst of your facial pain. To the point it can blind you and fuck you up for days. Panic attacks feel like you should be dead, it all *literally* feels like too much.
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Thank you for coming to my Ted Talk, and stuff.
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Replying to @AxiomVerge
My neuro treatment has been so expensive (and kind of terrifying) in the last five years, I am sort of scared to jump into anything without neuro referral. Last time I went he wanted to start a new treatment and quite frankly I don't think my body can take it anymore
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Replying to @sayomgwtf
If it's legal by you it could be worth a shot walking into a dispensary and asking...something with low or no thc might help. We got these 1 ml syringes for my son that lasted quite a while when diluted with grape seed oil. No side effects we could see, but also didn't help
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Replying to @AxiomVerge
It isn't legal, so it's not easy to find even with medical prescription. Why would your son need something that? He's a young little thing omg :(
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Replying to @sayomgwtf
He has cerebral palsy...but it seemed to do nothing either way so we eventually stopped
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Replying to @AxiomVerge @sayomgwtf
However we have a friend who uses it for fibromyalgia with some success...that was with the kind you smoke though and I didn't want to be the one to give you lung cancer
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Replying to @AxiomVerge
The only thing that would really bring some actual peace of mind were nerve shots, but last time I had to be hospitalized for a few hours because the shot knocked me the hell out instantly (apparently if it enters blood stream it can kill you)
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Replying to @sayomgwtf @AxiomVerge
All of this steems from physical violence, my neck is the one that got it worse but my nerve pain extends from face to my shoulder blade, chest, arm and leg - I have no idea how I can withstand pain spikes some days, it's crazy surreal
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It is ridiculous how fragile our nervous systems are...I search every day to see if there are new treatments for our son...stem cells, exosomes, remyelenation, CRISPR therapies... science is so slow in this one area
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Replying to @AxiomVerge
It really is. The thing that upsets me the most is that once there is any sort of damage, even if it's from a muscle trauma, nerve problems just get worse over time. And even with rehabilitation (which I did for years) you are still at risk that it just expands and gets worse
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