Dr Bernard Lown, Nobel Prize winner and hospital patient at 96, in revolt: "Healing is replaced with treating, caring is supplanted by managing." Should he be allowed to eat? Has anyone asked him? The magnificent story from the intern on his medical team.https://www.nytimes.com/2018/02/24/opinion/sunday/doctors-revolt-bernard-lown.html …
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Care planning is harm reduction, avoiding unnecessary treatments. Patient centred goal setting is health and well-being promotion ‘what is important to me’.
#TheFromeModel#compassionatecommunities reduction in emergency admissions by 30% -
To see more about this please follow these links.Patient centred goal setting is one part of a bigger picture https://www.theguardian.com/commentisfree/2018/feb/21/town-cure-illness-community-frome-somerset-isolation … https://www.theguardian.com/commentisfree/2018/feb/21/town-cure-illness-community-frome-somerset-isolation … https://www.resurgence.org/magazine/current.html …
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Terrific! For me as mom casemgr the silos & isolation were my kryptonite, depleting stores of resilience
#HowMightWe extend & spread these ideas (build community,
isolation, champion person-centered care plans that include & align what matters) to all PWI?
@vmontori#hcldr -
I apologise for this but I can’t stand the phrase person centred care. Almost as obnoxious as social prescribing. We live and and meaning and value in the people and places around us. Network centred care expresses this in a better way.
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Sorry for the autocorrect! We live and find meaning and value in the people and places that surround us.
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As a former healthcare professional and now a chronic illness Warrior, I couldn't agree more. Feeling as if I am being treated to manage me. That I am my illness. Rather than being honest and acknowledging that what I need help with is managing my family's and my expectations.
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need to be led by their needs and wishes irrespective of alignment to our perceptions and beliefs, to be brave enough to be alongside the dying , following their road map not our s . Trust people to die their way
@KathEvans2@KarenLadybirdy@fionaDmurphy @jayahmednhsgoveThanks. Twitter will use this to make your timeline better. UndoUndo
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The dialogue is starting in communities. Glad to say that "Being Mortal" project is coming to Howard County Maryland and it's a pleasure for me to participate from an ICU docs perspective
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I have purchased a number of copies of “Being Mortal” and it is required reading for all residents completing an elective rotation with me.
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More researchers are learning same thing from patients partnered in their studies. Great example re: study of more- vs. less-invasive heart valve replacement. PI: survival most important. Patients: "If we die, we die. We’re scared of becoming dependent."https://www.pcori.org/research-in-action/less-invasive-way-replace-heart-valve-newer-better …
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Clinical data is about being human but incomplete without the voice of the patient, family, and caregiver.
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Ask, but most importantly, listen.
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I continue to be so grateful for Being Mortal: thank you for profound wisdom.
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My father had to pull out all of his leads & lines 3x before the hospital would stop waking him every two hours to check his vitals. We got him into hospice for a beautiful dignified death surrounded by family & love as he wished. He was a few days shy of 95.
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That’s not to say he wasn’t
#Misdiagnosed multiple times in the 10 years prior to his death. I vividly remember when his PCP told him he had#LewyBody. “Absolutely not!” I protested. “His onset of symptoms doesn’t support that!” Why did I know that & his gerontologist didn’t?
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It was an outstanding book

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Game changer
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This holds equally true for the caregivers of children and young adults who so often feel left out of the loop despite their practical expertise. A touch of kindness never hurts as well
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We are making some headway. More discussions about end of life care, more Palliative Care consults. But we are still struggling to ask the question”What kind of life do you want if you can survive this illness”? I doubt many would answer trach PEG, LTAC. We need more honesty
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Even when cured the collateral damage from the treatment is daunting and forever ie chemobrain, loss of taste, smell loss of fertility etc
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