@rikisabatini & the data records design will be based around BILLING CODES, not for analyzing patient health /5
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Perfect example: why do we spend more time making waiting rooms nice than eliminating waits? https://tincture.io/the-waiting-game-9744a0fc35f#.j9s55jhov …
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@rikisabatini@PeterStaley how AIDS patients changed trials methodology & how they brought drugs to market /finThanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini talk to .@PeterStaley from ACT UP/TAG -> Pos/amFar about ACT UP,TAG,NIH, FDA, & Wellcome, b/c : /9Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini successful patients change policy & the way data is collected/handled & get drugs/devices to market /8Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini all types of patients need to realize they must educate,design for, & advocate for themselves /7Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini 2ndary holders of data sell "anonymized" copies of patient data as a research or marketing product /6Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini Nor will the data be necessarily freely given - copies may costs $100s /4Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini their personal data,it will be given to them in a Machine Readable format. /3Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini of why patient UX experiences are incredibly horrific.There are no guarantees if a patient requests /2Thanks. Twitter will use this to make your timeline better. UndoUndo
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@rikisabatini Patients have a data access, participation,& interpretation problem. It is the 6th ∑ /1Thanks. Twitter will use this to make your timeline better. UndoUndo
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