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  1. 2. velj
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  2. 2. velj

    In today's , there will be Game Changing moments. When this was made, only one person in the video was known to have ALS. Today, a 2nd person is now gone & his are playing for the Lombardi Trophy. ALS needs a winner. Now.

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  3. proslijedio/la je Tweet

    1/ We are determined to create a world free of ALS, but we know we can’t do it alone. In 2018, our Les Turner ALS Center at began sample collection and enrollment in the largest coordinated collaborative ALS research effort in history - .

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    28. sij

    Merit Cudkowicz, MD, MSc, Director of the Healey Center for ALS, discusses the impact of the “May Proceed” notice from the FDA for three drugs in first ALS platform trial via

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  5. 28. sij

    Our confidence in these patterns will grow as we add data points from additional study participants, but the initial observation is very encouraging, thanks to their commitment and the work of all involved.

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  6. 28. sij

    Although it is early days, our data science team has already identified a number of biological signatures and clinical characteristics that can be used to “sort” ALS into sub-groups. Patterns are emerging.

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  7. proslijedio/la je Tweet
    22. sij

    The Healey Center for ALS has received approval from the U.S. Food & Drug Administration (FDA) to proceed w/administering 3 proposed drug regimens in the HEALEY ALS Platform Trial – the first trial of its kind for ALS.

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    22. sij

    Look for and Michel Varisco on in February! spent time at the Congressional Gold Medal ceremony and Jon Frankel did an updated interview with them in New Orleans.

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    15. sij

    will receive the Congressional Gold Medal tomorrow, January 15th at 3pm EST. The ceremony will be at the US Capitol in Statuary Hall. You can watch the ceremony live on 's Facebook page:

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    We look forward to honoring two extraordinary men with this year, Ed Rapp of , and Matt Creen. Plus a special video presentation from . All hosted by our lovely emcee . Join us on Feb. 22!

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  11. 25. pro 2019.

    Wishing peace, love, and joy to all and especially those living with ALS on this day and every day.

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  12. 22. pro 2019.

    "Look at how a single candle can both defy and define the darkness." –Anne Frank Wishing a Happy Hanukkah to all who start the Festival of Lights today.

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    21. pro 2019.

    Flu can kill a person w ALS. If you get around anyone w ALS (and you probably do), you have a responsibility to them to be as safe as possible... and data indisputably say that flu shots matter.

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  14. 21. pro 2019.

    It goes without saying, but needs to be said often, ppl living w or lived w ALS have led this fight & continue to drive the urgency needed to ultimately find the answers to ALS. Thank you to those 841, to the 1100 Answer ALS participants & to all who give of themselves to

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    Great article about how technology is helping us find answers to much more quickly. We at ⁦⁩ agree: ⁦”⁩ is making a difference, and we are proud to be part of it.”

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    19. pro 2019.

    . teams help to create a Azure-based system for the research project to fight against . Find out how:

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  17. 17. pro 2019.

    Thank you and every person and group who showed up and keep showing up in pics, video or in the rain. Every day counts, so let’s keep making noise!

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  18. proslijedio/la je Tweet
    17. pro 2019.

    We are live! Watch the live stream of the billboards here:

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  19. proslijedio/la je Tweet
    15. pro 2019.

    On Tuesday, there will be an ALS awareness takeover in Times Square. While I won't be there, I was today and will continue to fight. I am . I am . .

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  20. proslijedio/la je Tweet

    I'm Brian. At 37 I was diagnosed with ALS. Told I should get ready to die. Then I met Pete, Pat, Sandy, Cory, Sarah, O.J., Steve, Ady and thousands of others told the same thing. And a funny thing happened: we decided not to listen. We decided to fight.

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