Andrea Pauls Backman

@AndreaBackman05

CEO . lost mom to ALS in 2010. board member . passionate about people w/ ALS/MND & fighting for a cure. views my own.

Chicago, Illinois
Vrijeme pridruživanja: prosinac 2013.

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  1. Prikvačeni tweet

    Meet Sally. Orphan at age 12, immigrant in the US at 17, runway and TV model at 25, yoga teacher at 40, college student at 65. Wife, mother, grandmother. Lost to ALS at 78. I called her Mom.

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  2. 31. sij

    We are also grateful for the 226 cosponsors in the House and 56 in the Senate supporting on to waive the 5 month waiting period, a request the community has been pushing for years.

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    1/ We are determined to create a world free of ALS, but we know we can’t do it alone. In 2018, our Les Turner ALS Center at began sample collection and enrollment in the largest coordinated collaborative ALS research effort in history - .

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    “Less than 2 years after the coordinated collaborative effort began, we are excited to see the data collected begin to present patterns + provide a clearer understanding of ALS," - Senda Ajroud-Driss, MD, Dir. of the Lois Insolia ALS Clinic + a Prin. Investigator of Answer ALS.

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    We are grateful to the people living with ALS and others who so generously participated in this research study to help us find the answers to this disease. Together, we will create a world free of ALS.

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  6. 30. sij

    Love this, ! These two faces say it all. knows no bounds and neither does family love.

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  7. 29. sij

    And a special thanks to for his presentation to Matt on February 22! Join us and be part of a wonderful night of hope and inspiration!

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    2/ In addition to raising a combined total of over $450,000 to support research and help families living with ALS, the event has spread awareness about the Foundation and ALS to countless members of Matt’s community, inspiring them and others to join our cause.

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  9. 29. sij

    We couldn’t be more honored to honor Matt Creen. Read about this amazing man in the thread below👇. Then sign up to join us on February 22, 2020 for our Hope Through Caring Gala.

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  10. 28. sij

    *Bedlack*

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  11. 28. sij

    There are lots of alternative or augmentative treatments out there for . One of the best resources to weed through the options is Dr. Richard Bedlaxk’s group at .

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  12. 27. sij

    TY, , for spending your national Day of Service with us. We and the greater family appreciate your helping us keep all our equipment for people with in great working order!

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  13. 26. sij

    Congratulations, for your achievements in the field!

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  14. 24. sij

    Thank you, @ Cytokinetics, for your support to to give people with and their families access to better resources in making tough decisions.

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    23. sij

    Cover your cough! & other respiratory illnesses, like respiratory syncytial virus (RSV), whooping cough, & severe acute respiratory syndrome (SARS), are spread mainly by coughing, sneezing, or unclean hands. People w/ flu can spread it to others up to about 6 feet away.

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    became the 1st NFL player + person living w/ to receive the Congressional Gold Medal, our nation's highest honor bestowed by Congress. Check out our latest for Steve's acceptance speech + video of the ceremony:

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  17. 19. sij

    Thank you to two Champions, and for providing motivation and inspiration to thousands in the fight!

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  18. 15. sij

    On behalf of all those who have gone before us and those living with ALS today, thanks, , and for fighting for all with .

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    1/ Today, will be presented with the Congressional Gold Medal, our nation’s highest civilian honor bestowed by Congress.

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  20. 15. sij

    As I’ve said before, NO ONE is more deserving of this award than . And having front and center in our nation’s capital today gives us all hope that we will be heard as we fight for more research funding, access to NIV & , and rapid drug trials & approvals.

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  21. 15. sij

    This is great! TY, , for your commitment to help fund the , led by and soon to be available at 54 sites, incl the Lois Insolia ALS Clinic at the Center at , this spring.

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