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Prikvačeni tweet
We are pleased to announce the advancement of new programs for odevixibat, currently in development for the treatment of PFIC. We plan to initiate a pivotal trial in biliary atresia in 1H 2020 & plan a pivotal trial in Alagille syndrome by end of 2020. http://ir.albireopharma.com/news-releases/news-release-details/albireo-achieves-significant-milestones-odevixibat-across …pic.twitter.com/11SWr3KxNh
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#RareDiseaseDay is February 29, 2020. There are more than 7,000 rare diseases, affecting millions of people worldwide. Included among them are several rare cholestatic liver diseases that most have never heard of. Help us#ReframeRare Liver Disease.pic.twitter.com/EOLI0roQCQ
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Albireo's Senior Director of Biostatistics Holly Huang had the honor of writing a review of the recently published book, Innovative Strategies, Statistical Solutions and Simulations for Modern Clinical Trials. Read it here: https://www.tandfonline.com/doi/full/10.1080/10543406.2020.1684183 …
#womeninstem#needherscienceHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
"Her itch began in the evening and lasted all night. She would scratch herself until she bled." Listen to Claire's powerful account of her daughter Eleanor's journey w/
#PFIC in our new#Youtube video:#PFICvoices#careaboutrare#stoptheitch#pficawarenesshttps://www.youtube.com/watch?v=6Dta12ivo5s …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#RareDiseaseDay is quickly approaching! This year, the theme is#ReframeRARE – and for us, that means reframing perceptions around different rare liver diseases. We can’t wait to share more with you next month!https://bit.ly/36EBFHhHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We know how valuable the patient voice is. This
#ALGSAwarenessDay we are proud of the Alagille syndrome community for raising their voices & sharing their stories to increase awareness for those living w ALGS. Check out their video: https://youtu.be/GM0rAWpFQxI#ALGSAware#ALGSvoicesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#FBF Pediatric hepatologist & namesake for Alagille syndrome, Daniel Alagille, was born on this day. Today we honor his discovery of this rare#liverdisease & raise the voices of those impacted. Learn more a/b Alagille syndrome: https://alagille.org/?page_id=1837#ALGSAware#ALGSvoicesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Today (1/24) is the first-ever GLOBAL Alagille Syndrome Awareness Day! We are proud to support the
@ALGSAlliance & the ALGS community, including patients, caregivers, loved ones and those working to find new resources and options.#ALGSAwarenessDay#ALGSAware#RareDiseasepic.twitter.com/r7jPy4M1Ah
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We’re thrilled to join
@ALGSAlliance and the entire Alagille syndrome community in supporting#ALGSAwarenessDay this January 24 - learn more: http://ir.albireopharma.com/news-releases/news-release-details/albireo-joins-alagille-syndrome-community-celebrating-first …pic.twitter.com/QBq8nhGxmf
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Alex and Walter were at a loss when their son Armando was diagnosed with progressive familial intrahepatic cholestasis (
#PFIC) at 3 months old – especially after finding out that a liver transplant might be necessary.pic.twitter.com/PwZwYgd71m
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We are a proud supporter of the first-ever global Alagille Syndrome Awareness Day on January 24, 2020!
@ALGSAlliance works tirelessly to improve the lives of those living with Alagille syndrome, a rare disease that can impact the liver.#ALGSAware#ALGSAwarenessDaypic.twitter.com/Wn2YrR6ceu
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"I think that is why we're doing this. This is why we're here - to try and find better ways of looking after these children." - Professor Richard Thompson, pediatric hepatologist at
@KingsCollegeNHS in London and consultant to Albireo#PFICvoiceshttps://bit.ly/2OxCRGaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Professor Richard Thompson, pediatric hepatologist at
@KingsCollegeNHS & consultant to Albireo has dedicated much of his life to studying rare cholestatic liver conditions & caring for those with#PFIC. He offers us a unique perspective: https://www.youtube.com/watch?v=wyu6gAQcMKk …#PFICvoicesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
From advocating for her son Trey after his
#PFIC diagnosis to advocating for the entire PFIC community as co-leader of the PFIC Network, Tara Kearns has had a remarkable PFIC journey.@MyDelmarvaNow shared her family’s story here: https://bit.ly/2JXhFX6#PFICvoicesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Caring for a loved one with progressive familial intrahepatic cholestasis (
#PFIC) is difficult enough – a lack of understanding of the#raredisease and its symptoms adds an additional burden on PFIC families. https://bit.ly/2XdacIT pic.twitter.com/loogfZICMD
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As an ICU
#nurse, Emily Ventura knows how important a strong support system is for#PFIC patients and their families. Read her story here: https://bit.ly/2NNROSA#PFICvoicesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
For
#PFIC patients and caregivers, each day presents a new challenge to overcome. Uncertainty shapes the lives of parents like Alex and Walter whose son Armando was diagnosed with PFIC at 3 months old. https://bit.ly/2WtxSrZ#PFICvoicespic.twitter.com/QOg5FhHnGd
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As we start a new decade, we are grateful for our team and all we've accomplished, and also excited for all that is coming in #2020. Our
#NewYearsResolution is to continue our commitment to helping people & families living w/ rare pediatric cholestatic#liverdiseases.pic.twitter.com/fArIOxVQ5l
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Everyone has a story, but we're
#grateful to the 8 PFIC families who bravely shared theirs. Our aspiration is that, through education and awareness, families living with rare liver disease can have hope for a brighter future. Thanks for looking back at#PFICvoices.#HappyNewYear!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
2019 was a big year for
#PFICawareness. Families stepped up to share their stories... and started a movement of raising global awareness for progressive familial intrahepatic cholestasis.#PFICvoices is just getting started; we see you 2020!https://bit.ly/2YmbC44Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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