Princess, The Tower

@APainPrincess

Chronic Pain Healing Portal for everyone affected by severe & —particularly Complex Regional Pain Syndrome .

The Tower
Vrijeme pridruživanja: studeni 2012.

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  1. Prikvačeni tweet

    “Pain is soul destroying. No patient should have to endure intense pain unnecessarily."

    Poništi
  2. “Be gentle on yourself…you are doing the best you can… Find others like you in support groups… Having loved ones who support you is crucial but having loved ones who can truly relate to what you’re going through is lifesaving.”

    Poništi
  3. “My unreliability makes me crazy. I always showed up and I always met deadlines before is so hard to understand, there are so many facets, so many inconsistent variables…even on a good day the pain is there roaring like a beast.”

    Poništi
  4. “I have to shower the day before an appointment because it hurts and wears me out. That’s my ‘thing’ for the day. I expended all my effort in taking a shower.” Things People Don’t Realize You’re Doing Because Your Pain Is Constant

    Poništi
  5. “2am…my feet touch my bed…and the pain of that touch wakes me up……I can’t get back to sleep then because I’m so much pain—what people with and call —the worst part of a 24hr period for a sufferer.”

    Poništi
  6. “Pain patients are routinely being abandoned relegating them to a life of agony, , and sometimes suicide when untreated pain becomes intolerable… The primary cause…unproven or outright erroneous assumptions—not rigorous medical evidence.”

    Poništi
  7. “It’s hard to explain the disease and its complexity to your physicians/physiotherapists over and over again… and then explaining to our society what it is… It can feel so lonely. No one knows anything about it.” What It’s Like to Have a

    Poništi
  8. 2. velj

    “My health declined as a result of pushing myself too far for too long…I was determined to push on as if nothing had changed, but things had changed. Learning to say no was vital to protecting my remaining health yet I still struggled to.”

    Poništi
  9. 2. velj

    “That’s the thing with those who are and have — we become experts in hiding our pain from other people… I’m in terrible pain all the time, but I don’t want you to feel awkward.” Why I Say 'I’m OK' Despite

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  10. 2. velj

    “You disappeared! Why would you do that?” When , , , insomnia, +extreme hits you all at the same time, it takes everything in us…we are sorry if we stop messaging…it’s not because we don’t care—trust me, we do.”

    Poništi
  11. 2. velj

    “In all my years as a doctor treating patients with , I never saw a patient who enjoyed feeling ill. I saw the opposite, patients who were once very active, desperately trying to find answers and treatment for their overwhelming symptoms.”

    Poništi
  12. 2. velj

    “A person with often feels the need to justify themselves to other people… [] are living a nightmare most days yet the people who should believe them, often don’t. They’re told the pain can’t be that bad…or that they’re just lazy.”

    Poništi
  13. 1. velj

    “I can walk but I can’t walk very far…I can stand, just not for very long… Limited as my mobility is, I’m still made to feel like a faker. I don’t look sick enough. I don’t look enough. I’m too young.”

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  14. 1. velj

    “When living with a chronic illness, we are often told not to let it define us… The truth is that sometimes does define you…such relentless and disabling symptoms often prevent you from living a 'normal' life.”

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  15. 1. velj

    “Mind over matter…push push push… My life didn’t have any room to slow down… And I crashed. My body began to rebel. My began to soar and my energy was non-existent… I fell hard… I have determined I’m the worst when it comes to .”

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  16. 1. velj

    “I miss the simple things—the sun on my face…I miss walking…I miss work…having a purpose…I miss being needed. I miss the seaside—the salty smell of the fresh breeze…I miss the vivid colours and the sheer beauty of the world.”

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  17. 1. velj

    “The overwhelming majority of patients are sincere people with serious medical conditions. Millions have been irreparably harmed by politicians, bureaucrats, and frightened physicians misapplying the half-baked CDC Guidelines.”

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  18. 1. velj

    “Leaving texts as ‘unread…’ I want to reply, but I’m just not capable…right now… When things get extra rough with levels, …I become rather quiet.” Things People May Not Realize We Do Because of Sudden Flare-Ups

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  19. 31. sij

    “In general people do not pretend they are in pain to get sympathy—research has shown that exaggerating or malingering are actually rare. Pain is whatever the experiencing person says it is, whenever the experiencing person says it does.”

    Poništi
  20. 31. sij

    “Living one day at a time is no longer just a cliché. It is reality and a survival mechanism… It’s so important to focus on what I can still do and keep doing it.” What It’s Like to Live With a Progressive

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  21. 31. sij

    “Sometimes I can’t pinpoint the cause…when I can, it’s almost always because I continued with an activity for too long… Don’t blame yourself. It’s natural for you to sometimes go over your limits; blaming yourself serves no useful purpose.”

    Poništi

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