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ICYMI:
@ChrisSnowCGY,#CalgaryFlames Ass't GM, and wife@kelsieswrites share their journey since Chris' recent familial#ALS diagnosis.https://sprtsnt.ca/380mPLEHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Because of your support, researchers like Terry Suk are opening new doors in
#ALS research to find answers about small proteins called SUMOs. Check out the clip below from Dr. David Taylor, VP Research to find out more.
#alsresearchmatterspic.twitter.com/DsqU8aLszhHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
If you're in the
#Ottawa area, check out the below Celtic concert fundraising event happening on March 1. A fun family outing that will support work toward#aFutureWithoutALS. Get your tickets today
https://twitter.com/ALS_Ottawa/status/1224020162980077571 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#Gamers get your game on and do good at the same time! Join@Stonegrasp on his quest toward#aFutureWithoutALS. Details below
https://twitter.com/Stonegrasp/status/1223605061965795330 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Pleased to participate in
#Budget2020 Ontario consultations. Thanks Minister@RodPhillips01 for the opportunity to engage and share the needs and perspectives of Ontarians living with#ALS. Let’s continue working together to improve Ontario’s healthcare system#aFutureWithoutALShttps://twitter.com/temerityTM/status/1223386193313832961 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
As we reflect on our day at Parliament Hill, we wish ALS advocate,
@MikeRannie, could have been here with us again this year.
The ALS community lost another bright light earlier this week - our thoughts and wishes are with his family.pic.twitter.com/ML4y8SDcYS
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you, MP Dr. Robert Kitchen, for taking the time to learn about the complex needs of Canada’s ALS community. We appreciate your support of our community and the need for research funding. Look forward to continuing to work with you in this Parliament.
#aFutureWithoutALS.pic.twitter.com/Qh56GglR4c
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thanks MP
@jeneroux for inviting us to discuss your Private Member’s Bill on compassionate care leave and the advocacy priorities and experiences of the#ALS community. Look forward to working with you in new role as Shadow Cabinet Minister for Health towards#aFutureWithoutALSpic.twitter.com/AENrcLmA8d
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Happy to have
#ALS advocates Nick Hall and Stephanie Christiansen Hall with us today in Ottawa. Thanks MP@Francis_Drouin for meeting earlier to discuss the advocacy priorities of the ALS community. Getting ready for our next meeting#aFuturewithoutALSpic.twitter.com/6Bm2qIzcaH
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
One year after Health Canada approval,
#Radicava is still not available through public drug plans, which isn’t right. Advocate to your provincial government to reimburse Radicava without further delay. Learn how you can play a role:https://bit.ly/2S6PMyOHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
2/2 Demandez à votre gouvernement provincial que le Radicava soit remboursé sans plus tarder. Voici comment vous pouvez participer :https://bit.ly/2U8RX7L
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
1/2 Un an après l'approbation de Santé Canada, le
#Radicava n'est toujours pas remboursé par les régimes d’assurance-médicaments publics, et ce n'est pas juste.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Members of our advocacy team are in Ottawa today to speak to MPs about key advocacy priorities. Keep an eye out for more updates throughout the day!https://twitter.com/temerityTM/status/1222857792563957760 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
On April 25, the Walk to End ALS in
#Etobicoke kicks off#ALS Canada's 2020 Walk season in Ontario! Click below to learn more and get involved.https://twitter.com/EtobicokeALS/status/1222654869812674560 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Grâce à vous, le programme de recherche de la Société de la SLA appuie Rahul Kumar
@TheNeuro_MNI dans l'étude du rôle de C9ORF72 – le gène le plus souvent associé à la SLA génétique. Pour en savoir plus : https://bit.ly/2U8Ptqa#larecherchesurlaSLAcompteHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Because of you, the ALS Canada Research Program is supporting Rahul Kumar
@TheNeuro_MNI in further examining the implications of C9ORF72 – the most common gene associated with genetic#ALS. Read more here: https://bit.ly/2S0OLIM#alsresearchmattersHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ICYMI: Former NFL player
@SteveGleason - Dx with#ALS in 2011- received the Congressional Gold Medal in a Capitol Hill ceremony on Jan 15. Watch the ceremony here
https://teamgleason.org/congressional-gold-medal/ … #keepexploring#aFutureWithoutALSHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A curiosity to understand the driving mechanisms behind
#ALS brought Rahul Kumar all the way to Canada from India. Check out the video below from Dr. David Taylor, VP Research, outlining Rahul's work exploring the most common genetic form of ALS.
#alsresearchmatterspic.twitter.com/5BKPSvcR6hHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
For Ontario’s 2020 Budget consultation we’re asking the gov’t to cut red tape that prevents access to new drugs, modernize the medical equipment program, and better support ppl living with
#ALS at home and in the community@celliottability@RodPhillips01 https://bit.ly/2tybx2AHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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