ALS CanadaOvjeren akaunt

@ALSCanada

We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS.

Ontario, Canada
Vrijeme pridruživanja: veljača 2009.

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  1. ICYMI: , Ass't GM, and wife share their journey since Chris' recent familial diagnosis.

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  2. Because of your support, researchers like Terry Suk are opening new doors in research to find answers about small proteins called SUMOs. Check out the clip below from Dr. David Taylor, VP Research to find out more. 👇

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  3. 3. velj

    If you're in the area, check out the below Celtic concert fundraising event happening on March 1. A fun family outing that will support work toward . Get your tickets today 👇

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  4. 2. velj

    get your game on and do good at the same time! Join on his quest toward . Details below 👇

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  5. 31. sij

    Pleased to participate in Ontario consultations. Thanks Minister for the opportunity to engage and share the needs and perspectives of Ontarians living with . Let’s continue working together to improve Ontario’s healthcare system

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  6. 30. sij

    As we reflect on our day at Parliament Hill, we wish ALS advocate, , could have been here with us again this year. 💔 The ALS community lost another bright light earlier this week - our thoughts and wishes are with his family.

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  7. 30. sij

    Thank you, MP Dr. Robert Kitchen, for taking the time to learn about the complex needs of Canada’s ALS community. We appreciate your support of our community and the need for research funding. Look forward to continuing to work with you in this Parliament. .

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  8. 30. sij

    Thanks MP for inviting us to discuss your Private Member’s Bill on compassionate care leave and the advocacy priorities and experiences of the community. Look forward to working with you in new role as Shadow Cabinet Minister for Health towards

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  9. 30. sij

    Happy to have advocates Nick Hall and Stephanie Christiansen Hall with us today in Ottawa. Thanks MP for meeting earlier to discuss the advocacy priorities of the ALS community. Getting ready for our next meeting

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  10. 30. sij

    One year after Health Canada approval, is still not available through public drug plans, which isn’t right. Advocate to your provincial government to reimburse Radicava without further delay. Learn how you can play a role:

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  11. 30. sij

    2/2 Demandez à votre gouvernement provincial que le Radicava soit remboursé sans plus tarder. Voici comment vous pouvez participer :

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  12. 30. sij

    1/2 Un an après l'approbation de Santé Canada, le n'est toujours pas remboursé par les régimes d’assurance-médicaments publics, et ce n'est pas juste.

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  13. 30. sij

    Members of our advocacy team are in Ottawa today to speak to MPs about key advocacy priorities. Keep an eye out for more updates throughout the day!

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  14. 30. sij

    On April 25, the Walk to End ALS in kicks off Canada's 2020 Walk season in Ontario! Click below to learn more and get involved.

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  15. 29. sij

    Grâce à vous, le programme de recherche de la Société de la SLA appuie Rahul Kumar dans l'étude du rôle de C9ORF72 – le gène le plus souvent associé à la SLA génétique. Pour en savoir plus :

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  16. 29. sij

    Because of you, the ALS Canada Research Program is supporting Rahul Kumar in further examining the implications of C9ORF72 – the most common gene associated with genetic . Read more here:

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  17. 29. sij

    ICYMI: Former NFL player - Dx with in 2011- received the Congressional Gold Medal in a Capitol Hill ceremony on Jan 15. Watch the ceremony here 👉

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  18. 29. sij

    A curiosity to understand the driving mechanisms behind brought Rahul Kumar all the way to Canada from India. Check out the video below from Dr. David Taylor, VP Research, outlining Rahul's work exploring the most common genetic form of ALS. 👇

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  19. 28. sij

    For Ontario’s 2020 Budget consultation we’re asking the gov’t to cut red tape that prevents access to new drugs, modernize the medical equipment program, and better support ppl living with at home and in the community

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  20. 27. sij
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