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ABatemanHouse's profile
Dr. Alison Bateman-House
Dr. Alison Bateman-House
Dr. Alison Bateman-House
@ABatemanHouse

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Dr. Alison Bateman-House

@ABatemanHouse

History & ethics of research on humans. Access to investigational meds. Public health is political. Retweet not endorsement. NYU Grossman SOM Medical Ethics

New York
med.nyu.edu/faculty/alison…
Joined August 2014

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    Dr. Alison Bateman-House‏ @ABatemanHouse 14 Sep 2018

    Dr. Alison Bateman-House Retweeted Dr. Alison Bateman-House

    This family worked hard to pay for the treatments themselves. Their child, their $, their choice. Where I draw a line is when public resources get involved. If the public is going to be paying for something, I want it to be evidence-based.https://twitter.com/ABatemanHouse/status/1040656374605205509 …

    Dr. Alison Bateman-House added,

    Dr. Alison Bateman-House @ABatemanHouse
    This is an agonizing read about one family's quest to keep their child alive even just a bit longer via a secret, unapproved treatment in Mexico. I'll never judge a parent's choice, & I'm glad this mom is confident of her choice. https://wapo.st/2QmeTMB?https://wapo.st/2QmeTMB?tid=ss_tw&utm_term=.b3db29bc1670 …
    10:44 AM - 14 Sep 2018
    • 1 Retweet
    • 5 Likes
    • Madhu⚕️ Singh, MD Sara Alyssa Burgart, MD, MA (She/Her/Anesthesia) Oscar G.  (おすかー) alexandra hall
    3 replies 1 retweet 5 likes
      1. New conversation
      2. Steve Joffe‏ @SteveJoffe 14 Sep 2018
        Replying to @ABatemanHouse

        I take a somewhat different view. 1. We have no idea if the 21 months would have been less (or more) if the family hadn't done this. 2. If you or someone you love is sick with something horrible, beware. Hucksters will take you for everything you've got if you let them.

        1 reply 1 retweet 5 likes
      3. Dr. Alison Bateman-House‏ @ABatemanHouse 14 Sep 2018
        Replying to @SteveJoffe

        totally agree: the child may have lived a longer or shorter time, had better quality of life or worse; nobody knows. In the absence of fact, I'm ok w/the parent deciding, tho I'd want them 2B educated about all those possibilities &the low likelihood that treatment will B helpful

        1 reply 0 retweets 0 likes
      4. Show replies
      1. New conversation
      2. OJ‏ @OJNilsen 14 Sep 2018
        Replying to @ABatemanHouse

        «Primum non nocere» not applicable when patients are paying?

        1 reply 0 retweets 1 like
      3. Dr. Alison Bateman-House‏ @ABatemanHouse 14 Sep 2018
        Replying to @OJNilsen

        That's not what I said. Read it again. WHERE THERE IS NO FACTUAL BASIS FOR DECIDING IF THE INTERVENTION WILL BE HARMFUL OR HELPFUL the patient gets to decide how much risk to take on the basis of how much/little evidence

        1 reply 0 retweets 1 like
      4. Show replies
      1. New conversation
      2. Irène Delse  🇨🇵 🇪🇺 #Vaccinée‏ @irenedelse 14 Sep 2018
        Replying to @ABatemanHouse

        "Their child, their choice" is a terrible argument. Parents are not owners of their child. They have to choose in the child's best interest, not just do what they like. And healthcare providers have to give full and accurate information to help them in this role.

        1 reply 0 retweets 0 likes
      3. Dr. Alison Bateman-House‏ @ABatemanHouse 14 Sep 2018
        Replying to @irenedelse

        I did not say “their child, their choice” as absolute rule. I said that in the context when there is neither evidence than a treatment would help or hurt the child.

        0 replies 0 retweets 1 like
      4. End of conversation

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