@ABC My husband's family carries this disease. It is treatable with dialysis & transplant. He had a transplant 15 years ago. #abcDRBchat
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@missquiltLaura@ABC did a fam member donate kidney? Does he take aniti-rejection meds? -
@Mrslaurabell@ABC yes he takes neoral, generic cellcept and about 7 other meds. 2 times a day. Small act to do, not to be on dialysis. -
@missquiltLaura@ABC good info. Sons creat level 4.5 right now- low hemaglobin just a matter of time -
@Mrslaurabell@ABC my hubby's DR listed him when his reached 5 so he would accrue time on the list & not be on dialysis as long & be healthy -
@missquiltLaura@ABC what is considered a healthy period of dialysis? -
@Mrslaurabell@ABC my hubby was only on dialysis for 9 months so when a kidney was available he was healthy enough to handle the surgery -
@missquiltLaura Congrats on the transplant! March is National Kidney Month - hope you & hubby will help raise awareness with#kidneyaware. - 1 more reply
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@ABC Alport Syndrome is a genetic kidney disease passed through the family#abcDRBchatThanks. Twitter will use this to make your timeline better. UndoUndo
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@ABC We are in need of awareness day for Bartter syndrome. We are located in Ohio. Nephrologist please support us.Thanks. Twitter will use this to make your timeline better. UndoUndo
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@mssociety@MorpheaInfo FYI --> MT .@ABC Health Tweet chat today 1PM, ET Conquering Rare Diseases. Use hashtag#abcDRBchat#Health#MedicineThanks. Twitter will use this to make your timeline better. UndoUndo
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