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  1. Staffing at Freeport is attentive and helpful. The sun's coming through my window as I visit with M and P. 7:35 AM Sep 9th from web
  2. M. and I have decided to apply for hospice care for me at Lesaard House or Freeport . An assessment will be done early next week. 2:02 PM Sep 4th from AlertThingy
  3. Don is sleeping most of the time, no major changes however. Often very confused due to medication and progression of disease. 4:37 PM Aug 30th from AlertThingy
  4. Tues had ERCP but Dr unable to put in a stent; hoping for another drainage option; very tired; sleeping most of the day 2:11 PM Aug 19th from AlertThingy
  5. Palliative care doctor had me come in a week early to get blood work done. Jaundice is still obvious, but no worse. Very, very tired. 7:35 PM Aug 11th from AlertThingy
  6. Call from palliative care doctor re jaundice Mon. am; minimal evidence of blockage on right/left branches; plan for new CT scan to compare. 6:50 AM Aug 10th from AlertThingy
  7. Visit from nurse and doctor re jaundice; next step an ultra sound; may require stent procedure; clearly some health still left in the liver. 8:45 PM Aug 6th from AlertThingy
  8. Symptoms of jaundice - yellow tinge to skin, light coloured stool, dark coloured urine, itchy skin. Jaundice, MCRC, liver failure. 12:03 PM Aug 5th from AlertThingy
  9. With the higher does opiods, I am sleeping a lot more. Ever so gradually I am starting to feel a little better. Please be patient with email 12:17 PM Aug 3rd from AlertThingy
  10. After consultation, have increased fentanyl patch by 33% and added more medication. Still very tired. Thank God for my palliative care team. 5:13 PM Jul 30th from AlertThingy
  11. Two days of extra dilaudid to counteract considerable pain in the rectum and buttocks. OTOH, good visits with my siblings, and their kids. 2:14 PM Jul 23rd from AlertThingy
  12. Next step - consultation with haematologist about the IVC filter. Can we replace the filter? 3:07 PM Jul 19th from AlertThingy
  13. Another good day. Still contemplating meaning of CT scan results - good, bad, indifferent? Good week visiting friends. Still reading SF. 3:04 PM Jul 17th from AlertThingy
  14. Successfully completed CT scan yesterday. Afternoon and evening tough. Frequent BMs. More dilaudid for pain. Swollen legs. Nurse today. 7:18 AM Jul 10th from AlertThingy
  15. Pain returns with a vengeance. Incredibly drowsy. Mixing up reality and non-reality (dreams, TV, books, etc). Don't ask for my opinion! 4:16 PM Jul 6th from AlertThingy
  16. What's a pleasant way of saying I'm "running" to the bathroom every few minutes? Oh, there isn't one? Let's just say it's an uneven recovery 5:59 PM Jul 3rd from AlertThingy
  17. Family/friends visiting again after a needed break. New Paramed nurse. Still requiring a lot of sleep. Not enough energy to blog just yet. 10:36 AM Jul 1st from AlertThingy
  18. @mitch Thanks. I'd like to think the universe agrees with you that I deserve a break from pain, pain meds, etc. 7:58 AM Jun 30th from AlertThingy
  19. Finally looks like I'm over the viral infection. Using far fewer dilaudid. Sleeping well. Feeling pretty good, albeit quite weak. 7:30 AM Jun 30th from AlertThingy
  20. Still drowsier/tired than normal. Appetite starting to come back gradually. I guess my resources are pretty thin these days. 8:53 AM Jun 28th from AlertThingy