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  1. RT: @rarediseaseblog People living with rare diseases ask for plans, or national strategies, in 25 European countries http://bit.ly/3OmIzk 2:05 PM Nov 8th from web
  2. RT: @rarediseaseblog Peter Saltonstall, CEO NORD, "When Should Patients Be Given Access to Investigational Drugs?" http://bit.ly/RObTw 9:11 AM Oct 30th from web
  3. @deweytalkpretty Feb 29 is Rare Disease Day - but only on leap years - The Rare Day for Special people - Feb 28 every other year 3:31 AM Oct 23rd from web in reply to deweytalkpretty
  4. #Rare Cancer Photo Essay on NYTimes site, Amazing! http://tinyurl.com/msufoe 8:02 AM Jul 28th from web
  5. New #rare disease survey (Europe) - 40% of patients initially misdiagnosed leading to severe consequences http://is.gd/iUZC 8:38 AM May 31st from web
  6. Irish Health Service Executive says "finite funding" for medication for patients suffering from rare diseases http://tinyurl.com/ma7rms 1:40 AM May 29th from web
  7. New #rare disease survey (Europe) - 40% of patients initially misdiagnosed leading to severe consequences http://is.gd/iUZC 7:38 AM Mar 22nd from web
  8. #rare disease covered in 'The Lancet' http://tinyurl.com/cqzby6 3:00 AM Mar 17th from web
  9. New #rare disease survey (Europe) - 40% of patients initially misdiagnosed leading to severe consequences http://is.gd/iUZC 7:38 AM Mar 1st from web
  10. #Rare Disease Day photos in a slideshow http://tinyurl.com/djgs6a 8:46 AM Feb 26th from web
  11. Scientist Magazine Article 'International solidarity on a global scale for #rare diseases http://tinyurl.com/bcelw2 Registration required! 8:45 AM Feb 26th from web
  12. The Voice of 12,000 #Rare Disease patients http://eurordiscarebook.eurordis.org/ 8:00 AM Feb 26th from web
  13. #Rare Disease Survey results (EUROPE) go online http://tinyurl.com/ca29gb 4:25 AM Feb 26th from web
  14. New video #Rare Disease Day http://tinyurl.com/ca2n94 4:00 AM Feb 23rd from web
  15. Interesting NYT Magazine article featuring the NIH Undiagnised Disease Pgm http://tinyurl.com/b5tegh #rare 2:28 AM Feb 23rd from web
  16. New #rare disease survey (Europe) - 40% of patients initially misdiagnosed leading to severe consequences http://is.gd/iUZC 7:38 AM Feb 22nd from web
  17. #Rare Diseases en espana FEDER launches http://www.masde3millones.com/ 8:56 AM Feb 20th from web
  18. Breaking News: #Rare Disease Day article in the Huffington Post by Jim Luce http://tinyurl.com/be3zdh 9:12 AM Feb 19th from web
  19. What a sweet photo! - Tired Dad with Evelyn (Myotubular Myopathy) #rare http://tinyurl.com/bo6xap 8:47 AM Feb 18th from web
  20. A Heroic Dad (Mesothelioma) - New photo on #rare disease day flickr photostream: http://tinyurl.com/bqgjt7 8:46 AM Feb 18th from web
  • Name Rare Disease Day
  • Location Worldwide
  • Web http://www.raredi...
  • Bio Information feed to help raise awareness of Rare Disease Day - Feb 28 2009
84 Following 279 Followers 10 Listed
B4D4M4N Thecavantrust Karen Durrant Silja Sean Smith FEDER U.S. FDA NHHealthcare Lisa Emrich Trisha Torrey NF Endurance Disgruntled Julie margalit Howard Lake Laura Good Dan Morgan celinafabrizio AJaneChambers johnnyA99 Julie Fletcher WeAreUs Laura Palmero Bo MyDocHub wpat007 ukfundraising softclothing Sean Woodruff Samantha Coburn Doug Penta MD Patrick Hankinson GeneticEngineering Brendan B Zachery TGRI Jake Minturn