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rarechromobaby

  1. 12 days till Christmas; what gift do I really want? One #Jaeli nursing. Would you pls #pray for this? 11:56 AM Dec 13th from TweetDeck
  2. Translocations, g-tubes, syringes, hospital stays, support groups, medical jargon I understand... this is my world now. #jaeli 1:34 PM Dec 11th from TweetDeck
  3. Mama, help! I was on my back and now I'm stuck on my tummy! (#Jaeli just rolled over for the first time & almost got herself back.) 9:06 PM Dec 9th from TweetDeck
  4. Mama is feeding me small bits of milk with a syringe. I like it. A bottle nipple feels strange. I chew it. 3:13 PM Dec 9th from TweetDeck
  5. @alonsorodriguez If you're still interested, there is a #Jaeli update & donation section in the sidebar on http://bit.ly/4IGXln. *Thank you* 3:11 PM Dec 9th from TweetDeck in reply to alonsorodriguez
  6. Deplorable! This Dutch researcher would have killed my #Jaeli & she's defied many odds! http://bit.ly/6yF9ay I'm disgusted. 1:12 PM Dec 9th from TweetDeck
  7. I'm so happy to be home! 1:06 PM Dec 4th from TweetDeck
  8. RT @AngEngland: New update from @BrandyBrow on #Jaeli on Facebook Group! http://bit.ly/8WIk59 Woohoo!!! 11:19 AM Dec 2nd from TweetDeck
  9. #Jaeli goes home (11/2) on no heart meds. We no longer have to dance everything around Captopril. Whoop! Snoopy dance! \o/ 2:05 PM Dec 1st from TweetDeck
  10. RT @serum_music: 12.18.09-Queens, NY: benefit concert 4 Baby Jaeli & Families in Need w/Kristina Halloway... #jaeli 4:25 PM Nov 27th from TweetDeck
  11. "God allows what He hates to allow what He loves." Your thoughts on this? #god #ponder #quote #thoughtoftheday 7:58 AM Nov 23rd from TweetDeck
  12. I've met lots of people at my new hospital. Some are really nice. Some hurt me. I don't like needles. 7:19 PM Nov 20th from TweetDeck
  13. I just heard a helicopter. I'm hungry so I'm chewing on my fist. They won't let me eat yet because I have a test soon. 10:32 AM Nov 16th from TweetDeck
  14. I saw new doctors yesterday at a new hospital. It was a big hospital but the rooms were small. The doctors were nice. 9:57 AM Nov 14th from TweetDeck
  15. I go to a new doctor tomorrow. I hope she sees the blood in my stomach & my lots of puking & changes my food. 9:45 PM Nov 1st from TweetDeck
  16. #Jaeli just laughed. Her first laugh! 6:25 PM Nov 1st from TweetDeck
  17. Ever seen a nine pound baby sit up? Check out #Jaeli. http://pic.gd/b58252 9:41 AM Nov 1st from TweetDeck
  18. RT @AngEngland: Update on #Jaeli plus donations, questions answered, etc. We have milk through the rest of '09 now! http://bit.ly/4Dvizq 7:43 PM Oct 29th from TweetDeck
  19. Blood during my last feed. None so far on this one, but my tummy hurts lots. 5:53 PM Oct 29th from TweetDeck
  20. I get to go see a new doctor on Monday. I hope that doctor can help my tummy feel better. 5:12 AM Oct 29th from TweetDeck
  • Name Baby Jaeli
  • Location United States
  • Bio I was born June 2009 full term at 5 pounds 4 ounces with a rare chromosome disorder. I'm an only! My mom @brandybrow helps me tweet.
18 Following 195 Followers 4 Listed
Sharon Wren pam fidler Judith Bailey Brenda Coats Kelly Huckaby Kristin Langmade MckMama cstax Brigitte Thompson mike susz Stephanie Stearns Aberta Seale Gina Ritter Janice Green Amanda Bennett Victoria Gaines Unique Rarechromo brandybrow