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JourPM

  1. RT @MsGreene Do posts ever make you crazy? http://bit.ly/4BxueF Some Hospital CEOs put Marketers in charger of patient experience. #WhyPM
  2. @andrewspong: @JourPM at #3ecf? We would be thrilled! Where will it take place?
  3. Cool - we get a comment from an author of the "patients DO want all their data" paper! http://is.gd/4Yr5d (See my response) #epd
  4. #WhyPM: Today's cool concept: techno-totemism - social groups achieve coherence by being identified w/a technology; B.Shen in JoPM.org
  5. The e-patient meme is spreading like CRAZY: 509 unique google hits in the past WEEK. http://is.gd/4YfwW.
  6. True classic post: RT @SusannahFox: @VinceKuraitis An old post I wrote abt googlers vs. cyberchondriacs vs. e-patients http://bit.ly/4bZvMS
  7. #WhyPM Make a plan to reduce diabetes in rural areas and win $20k! Best of all, yourr plan will be implemented! See http://e-patients.net
  8. @SusanCarr see/use #WhyPM for Participatory Medicine and read the journal to find out Why: http://jopm.org
  9. RT @stevesilberman: Study: Uninsured patients with traumatic injuries more likely to die. http://bit.ly/4o6EvW #whypm
  10. RT @ePatientDave: For me it's not just the cancer - I was a tireless hound dog in rooting out gotchas between plans. #phat
  11. Note: data in that study collected THREE YEARS AGO. Evidently "gimme my data" is not a 2009 fad. #epd
  12. e-patients.net/@TedEytan: Study finds pts want ALL their data. "I want the computer to know who I am" http://is.gd/4VxgF
  13. RT @Berci: Top 10 Innovations at TEDMED 2009 (via @accarmichael) http://ff.im/-buG99
  14. Kate Christensen, MD - "Instead of doing this FOR our members, let's do this WITH our members" - on involving patients in kp.org #WhyPM
  15. #FDASM More @gfry:"Web-mediated research[by pts] involves data collection&aggregation that can eclipse RCTs as evidence" http://is.gd/4UgaH
  16. mikemagee
  17. RT @angel189: Welcome to the age of participatory health...wanted or not #fdasm
  18. #FDAsm More @gfry: "Shared patient data can help identify drugs and effective treatments faster and less expensively" http://is.gd/4UgaH
  19. #fdasm @gfry in J. Participatory Med: "simple advice from patient group transformed life expectancy from <8mo to ? yrs" http://bit.ly/1Lw6Cw
  20. @gfry hm, here's J. Zabat-Zinn "Participatory medicine" in PubMed http://is.gd/4UcSQ; where's full text? Same ideas as us?