gnatlive
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and it's over. lunch!
6:26 PM Apr 22nd
from Nambu
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NGOs in Nelson-Marlborough area working together, cooperating and matured. Now DHB asked to engage with group.
6:25 PM Apr 22nd
from Nambu
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Where we have excellent examples of innovation, create evidence base to have informed discussion.
6:23 PM Apr 22nd
from Nambu
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A: MoH trying to figure out how to spread innovation in sector. One key area not very good at right now is evaluating implementations.
6:23 PM Apr 22nd
from Nambu
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Q: what work doing in your own areas to empower patients--building trust, workign with IPAC & DHB initiatives, get involved w/data?
6:22 PM Apr 22nd
from Nambu
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two drivers for maternity back into hospitals: workforce shortage in midwives, attitude of women and choices they make.
6:18 PM Apr 22nd
from Nambu
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NGOs still invisible in decision-making process. Maternity achieved community-based, now attempts to drag it back into 2ndry.
6:16 PM Apr 22nd
from Nambu
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50% of care provided in community by NGOs
6:16 PM Apr 22nd
from Nambu
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problem goes away if patient holds their data
6:14 PM Apr 22nd
from Nambu
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in privacy discussion: women health, many women feel there's private data they don't want shared
6:14 PM Apr 22nd
from Nambu
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Another attendee: in danger of letting tail wag dog. 80% of pop couldn't care who sees records, just want to get better.
6:11 PM Apr 22nd
from Nambu
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tendency for exclusion in industry, with late and token consultation. pleased not to speak sooner. MoH's planned engagement could be good.
6:07 PM Apr 22nd
from Nambu
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not always easy: many patient groups built on their bad experiences and existence is to consistently raise that issue. others are constructv
6:06 PM Apr 22nd
from Nambu
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consultation always seems token and at the 11th hour
6:06 PM Apr 22nd
from Nambu
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Q...: if this is trust and confidence, officials and experts and technocrats and clinicians get together but don't engage w/ community
6:05 PM Apr 22nd
from Nambu
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Q from family advocacy network: been to many forums like this in last 8-10 yrs. frustrated b/c few ppl speaking from consumer/family suppt
6:05 PM Apr 22nd
from Nambu
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BLAH BLAH BLAH there are some extremely inarticulate people, even in medicine
6:03 PM Apr 22nd
from Nambu
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Q from audience about trust. Says health industry needs to show they deserve trust at the moment.
6:02 PM Apr 22nd
from Nambu
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the answers seem to imply that prison & housing & work are high risk not low risk, and we need to start w/ high value low risk sharing
6:00 PM Apr 22nd
from Nambu
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A: what's the scope of the info in the record, and who has access to it? Must approach the issues in that way.
5:59 PM Apr 22nd
from Nambu
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