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gnatlive

  1. and it's over. lunch!
  2. NGOs in Nelson-Marlborough area working together, cooperating and matured. Now DHB asked to engage with group.
  3. Where we have excellent examples of innovation, create evidence base to have informed discussion.
  4. A: MoH trying to figure out how to spread innovation in sector. One key area not very good at right now is evaluating implementations.
  5. Q: what work doing in your own areas to empower patients--building trust, workign with IPAC & DHB initiatives, get involved w/data?
  6. two drivers for maternity back into hospitals: workforce shortage in midwives, attitude of women and choices they make.
  7. NGOs still invisible in decision-making process. Maternity achieved community-based, now attempts to drag it back into 2ndry.
  8. 50% of care provided in community by NGOs
  9. problem goes away if patient holds their data
  10. in privacy discussion: women health, many women feel there's private data they don't want shared
  11. Another attendee: in danger of letting tail wag dog. 80% of pop couldn't care who sees records, just want to get better.
  12. tendency for exclusion in industry, with late and token consultation. pleased not to speak sooner. MoH's planned engagement could be good.
  13. not always easy: many patient groups built on their bad experiences and existence is to consistently raise that issue. others are constructv
  14. consultation always seems token and at the 11th hour
  15. Q...: if this is trust and confidence, officials and experts and technocrats and clinicians get together but don't engage w/ community
  16. Q from family advocacy network: been to many forums like this in last 8-10 yrs. frustrated b/c few ppl speaking from consumer/family suppt
  17. BLAH BLAH BLAH there are some extremely inarticulate people, even in medicine
  18. Q from audience about trust. Says health industry needs to show they deserve trust at the moment.
  19. the answers seem to imply that prison & housing & work are high risk not low risk, and we need to start w/ high value low risk sharing
  20. A: what's the scope of the info in the record, and who has access to it? Must approach the issues in that way.