Get short, timely messages from USeb.

Twitter is a rich source of instantly updated information. It's easy to stay updated on an incredibly wide variety of topics. Join today and follow @EBSurvivors.

Get updates via SMS by texting follow EBSurvivors to 40404 in the United States
Codes for other countries

Two-way (sending and receiving) short codes:
Country Code For customers of
Australia
  • 0198089488 Telstra
Canada
  • 21212 (any)
United Kingdom
  • 86444 Vodafone, Orange, 3, O2
Indonesia
  • 89887 AXIS, 3, Telkomsel
Ireland
  • 51210 O2
India
  • 53000 Bharti Airtel, Videocon
Jordan
  • 90903 Zain
New Zealand
  • 8987 Vodafone, Telecom NZ
United States
  • 40404 (any)

EBSurvivors

  1. Thanks @butterflichild We're already picking out cute wigs for after we go bald for #epidermolysisbullosa if ppl give $4000 by 8/7! 12:33 AM Jul 31st, 2010 via web
  2. Hey! 3 girls are willing to shave their heads for #epidermolysisbullosa if ppl donate $4,000 by 8/7 http://bit.ly/cdZmmC Spread it! RT. 8:43 PM Jul 30th, 2010 via web
  3. @monsie @katie_love & USeb founder Jamie Hartley will shave their heads ppl donate $4,000 by 8/7! http://bit.ly/cdZmmC Please RT!! Go Go Go 8:42 PM Jul 30th, 2010 via web
  4. Having #epidermolysisbullosa is no fun but here's 1 perk-your eligible to win an Apple IPAD from @EBSurvivors thru our writing contest! 6:19 PM Jul 7th, 2010 via web
  5. Spread the word...enter @EBSurvivors writing contest & have the chance to win an IPAD!!! Rules & details: http://bit.ly/bKLxPC Go Go Go. 6:16 PM Jul 7th, 2010 via web
  6. BIG NEWS: @EBSurvivors is having a writing contest & the prize is (dun dun dun) an Apple IPAD!!! Did u faint? Enter: http://bit.ly/bKLxPC 6:15 PM Jul 7th, 2010 via web
  7. Do something today that you aren't sure you can do. Suprise yourself by how capable & unique you are. 9:07 AM Jul 6th, 2010 via mobile web
  8. EB RESOURCE: MRSA: What You Should Know http://bit.ly/dmaoRu 9:06 AM Jul 6th, 2010 via mobile web
  9. We are busy planning away for #EBSurvivorscamp and trying to find last minute funds. Get excited! We can't wait to spend the week together! 8:40 PM Jul 5th, 2010 via web
  10. Thanks @Chernobyl for spreading the word about #epidermolysisbullosa ! We r a nonprofit trying to help ppl w/EB be independent! :) 8:39 PM Jul 5th, 2010 via web
  11. We can't wait for this year @EBFRIENDS We only wish Cristina and Kara could be alive to see #EBSurvivorscamp in action! 8:31 PM Jul 5th, 2010 via web
  12. @steviemarie89 We are SO excited you are coming all the way from Austrailia for #EBSurvivorscamp ! 8:30 PM Jul 5th, 2010 via web in reply to steviemarie89
  13. Hey @andrewzimmern ! We're blushing slightly & kinda starstruck over your follow. Could you spread the word about EB? http://bit.ly/cdZmmC 12:32 AM Jun 26th, 2010 via web
  14. Hey @erdoland saw ur tweet about having EB! Great to find you! We r a non-profit trying to help ppl w/EB be independent & self-reliant:) 12:20 AM Jun 26th, 2010 via web
  15. We heard the @NatGeoChannel show that featured Garret with #epidermolysisbullosa was SO good and totally inspiring! 12:18 AM Jun 26th, 2010 via web
  16. Thanks for the plug @steviemarie89 ! We love you for your efforts! 12:16 AM Jun 26th, 2010 via web
  17. How cool is that @queeniejelly ? The Speaker of the House of Commons cares about #epidermolysisbullosa ! Totally awesome. 12:16 AM Jun 26th, 2010 via web
  18. How exciting @queeniejelly about your speech for DEBRA at the House of parliament! 2:19 PM Jun 22nd, 2010 via mobile web
  19. @cris_lg We would love to have you come to our summer camp for EB survivors one day! 2:17 PM Jun 22nd, 2010 via mobile web
  • Name USeb
  • Location Alpine, Utah
  • Web http://www.ebsurv...
  • Bio Working to develop independence & self-esteem among survivors of Epidermolysis Bullosa.Promoting the dignity of people with disabilities by spreading awareness.
69 Following 104 Followers 5 Listed
towan1079412 Summer Phillips Tânia Catherine Smith Samantha Rose Smith StandUp4EB (Alexis) Jennifer Fiander Stefan Chernobyl Children Erin Doland Andrew Zimmern Cristina SEP Dorothy Thornhill National Geographic Tina Hailey B Robb Freed EB Resource novocainedreams Julie ashley dorion alma Ant Gould Melissa Smith Rare Disease Day Jo Fábio Perin Haley Rice Sharon Richman Appetite for Good Jessica Lynn Townley Nada E. heather lounsbury Adam Richman