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curedravet

  1. Movin for Maddie in Menomonee Falls, WI, just one week away! There is still time to join the walk and help... fb.me/1mhAUj8Uy about 5 hours ago via Facebook
  2. Congratulations to Gio's Garden who just announced they received their state license for their Respite Center in... fb.me/1le3FhVr0 2:34 PM May 23rd via Facebook
  3. I am so pleased to announce that the International Ion Channel Patient Registry is officially open! Co-funded by... fb.me/1nlSm2ECe 3:26 PM May 17th via Facebook
  4. I am so pleased to announce that the International Ion Channel Patient Registry is officially open! Co-funded by... fb.me/1y35oxKiP 3:25 PM May 17th via Facebook
  5. Thanks to Erin Thompson from Queensland, Australia for helping raise awareness and funding for Dravet syndrome... fb.me/1oFwn4aX8 3:45 PM May 16th via Facebook
  6. Learn about the recently awarded research grant to Dr. Annapurna Poduri, as well as the other research projects... fb.me/W1XTixY1 2:02 PM May 16th via Facebook
  7. The DSF Spring Newsletter went out today! If you are not on our email list, here is the link to learn more about... fb.me/1VvCgSEQh 10:26 AM May 15th via Facebook
  8. Movin' for Maddie is June 1st in Menomonee Falls, WI. Make sure to register by May 15th to guarantee your free... fb.me/120iEZwot 12:16 PM May 11th via Facebook
  9. Movin' for Maddie is June 1st in Menomonee Falls, WI. Make sure to register by May 15th to guarantee your free walk shirt and goodie bag! 12:15 PM May 11th via Facebook
  10. Although Sarah does not have Dravet syndrome, her dad David is doing a great job raising awareness and funding for... fb.me/USI8ZFnQ 3:26 PM May 8th via Facebook
  11. Just a reminder - if you are near Boise, ID, the 2nd Annual Luck Be Alexis Tonight: A Benefit for the Dravet... fb.me/1UndgTwDM 6:50 AM May 5th via Facebook
  12. Our sister organization, DSF Spain has forwarded this link and info on a survey for families they are conducting... fb.me/247zbra6x 6:27 AM May 4th via Facebook
  13. If you are in the Toledo, OH area, please join us at this year's fundraising walk on September 15th. Let's raise... fb.me/1IqO4Q8G6 5:24 AM May 3rd via Facebook
  14. We wanted to send a special thank you to Athina at Athina Loveland Photography for the beautiful pictures she... fb.me/1Yjc2uWBT 5:56 AM May 2nd via Facebook
  15. If you would like to order photos from this year's Ciara's Butterfly Bash, where we honored the team from Miami... fb.me/1h6raf2l3 3:39 PM May 1st via Facebook
  16. We are already up to 9 walks for this year's DSF Steps Toward a Cure!!! If you would like to host a walk in your... fb.me/1kKL0JotN 9:02 AM May 1st via Facebook
  17. We are already up to 9 walks for this year's DSF Steps Toward a Cure!!! If you would like to host a walk in your... fb.me/1XLIcMt5p 8:09 AM May 1st via Facebook
  18. If you are in the area, please join DSF Steps Toward A Cure: Lacey, WA on Saturday, September 8th. This is a... fb.me/1BUq5nLsC 8:34 PM Apr 24th via Facebook
  19. If you are in the area, please join DSF Steps Toward A Cure: LAcey, WA on Saturday, September 8th. This is a... fb.me/1FC64XNGC 8:32 PM Apr 24th via Facebook
  20. This Friday and Saturday, April 27th & 28th, Don Tommaso's Bistro Italiano in Yorktown Heights, NY, will donate... fb.me/22jnHXJJX 2:24 PM Apr 23rd via Facebook
  • Name Mary Anne Meskis
  • Location Monroe, CT
  • Web http://www.dravet...
  • Bio The mission of the DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.
14 Following 70 Followers 1 Listed
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