Get short, timely messages from CHARGE Foundation.

Twitter is a rich source of instantly updated information. It's easy to stay updated on an incredibly wide variety of topics. Join today and follow @chargesyndrome.

Get updates via SMS by texting follow chargesyndrome to 40404 in the United States
Codes for other countries

Two-way (sending and receiving) short codes:
Country Code For customers of
Australia
  • 0198089488 Telstra
Canada
  • 21212 (any)
United Kingdom
  • 86444 Vodafone, Orange, 3, O2
Indonesia
  • 89887 AXIS, 3, Telkomsel
Ireland
  • 51210 O2
India
  • 53000 Bharti Airtel, Videocon
Jordan
  • 90903 Zain
New Zealand
  • 8987 Vodafone, Telecom NZ
United States
  • 40404 (any)

chargesyndrome

  1. So much great information presented by David Brown tonight at the 2nd CHARGE Syndrome Foundation Webinar. Stay tuned for it to be posted!
  2. David talks about postural security and the subsequent effects on individuals with CHARGE...#chargesyndrome
  3. Webinar update: David Brown recommends media.hhmi.org/hl/08Lect3.html (lecture by Thomas M. Jessell, Ph.D. to learn more on proprioception)
  4. David Brown is discussing taking the sensory perspective on behaviors exhibited by individuals who have #chargesyndrome in the webinar.
  5. The "Forgotten Senses" Webinar with David Brown is happening right now!
  6. For FL families: free Wrightslaw Training Program! in Sarasota on May 12th, 2012 wrightslaw.com/speak/12.05.fl…
  7. The spring newsletter link went out recently - did you receive it? If not, contact the office info@chargesyndrome.org to update your info!
  8. The 2013 Conference Call for Presentations will go out in July - think you know someone who would be a great presenter? Let us know!
  9. The 11th Int'l CHARGE Syndrome Conference Facebook page is up! Come 'like' us to get all the info about conference: facebook.com/11thInternatio…
  10. New Perkins Webcast: CHARGE Syndrome: Providing Physical Therapy support.perkins.org/site/R?i=8wejx… with Maryann Girardi
  11. CHARGE Accounts articles deadline is March 15. Featured topic: Education. Email articles to leslie@chargesyndrome.org tiny.cc/CSFNG
  12. Wrap-up of the first ever CHARGE Syndrome Foundation Webinar - a GREAT, informative evening learning about pain issues in CHARGE!
  13. Webinar Update: Dr. Hartshorne & Kassee Stratton now take questions from the audience - talking about teeth grinding now...
  14. Webinar Update: Kassee Stratton is now presenting her research on the CHARGE Non-Vocal Pain Assessment (CNVPA)
  15. Abdominal migraines, constipation, GERD, Breathing, Hip/Back/muscle Pain & difficulty swallowing: the conditions causing most pain in CHARGE
  16. Dr. Timothy Hartshorne is now speaking on abdominal migraines in CHARGE. The webinar will be archived & up on the foundation website soon.
  17. The first-ever CHARGE Syndrome Foundation webinar is on right now - Pain Issues in CHARGE. Dr. Timothy Hartshorne is speaking now.
  18. CSF Webinar: Issues with Pain in CHARGE tonight at 7pm EST. If you didn't register, it will be available online soon chargesyndrome.org
  19. 2012 Membership Campaign is underway - more members mean more access to grants/projects - PLEASE join at chargesyndrome.org/membership.asp Thank you!
  20. Sleep safe beds giving away one bed per quarter - enter here: sleepsafebed.com/GiveAway/index…