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brandybrow

  1. I had a wonderful time tonight connecting with a childhood friend here in #Boston, a precious gift. My heart is warm and I hope hers is too.
  2. #Jaeli is great today. Her kidneys continue to function well despite water in them. Keep praying. God is working.
  3. I had mention corn allergy at the last hospital and was admonished. Thank you God again for Children's Hospital Boston. #jaeli
  4. Also explains her strong reaction to polycose powder, a calorie booster from corn sugars. #jaeli
  5. Doctors think #Jaeli may be allergic to corn and the reason for her multiple formula intolerances. Makes perfect sense.
  6. An awesome friend sent brownies to the hospital for my birthday. I'm so suprised and excited: Chocolate! I've been hankering.
  7. @AngEngland Miss you. Maybe I'll call you later. Right now I have to label breast milk bottles. :-)
  8. @susan_stewart Thanks for the reminder. THAT was a birthday gift. :-)
  9. #Jaeli has water in her kidneys and a ureter is dilated. Doctors are watching for kidney failure.
  10. Thank you for all the birthday wishes. You make me smile.
  11. #Jaeli is going down for another renal ultrasound right now because of something they saw on her Mag 3 nuclear test this afternoon.
  12. #Jaeli went nuclear today. She had a Mag 3 test: radioactive material injected into her blood to read her kidneys.
  13. "God allows what He hates to allow what He loves." Your thoughts on this? #god #ponder #quote #thoughtoftheday
  14. Please #pray #Jaeli's doctors find the source of her infection so we can prevent others and #Jaeli can be safely home. TY
  15. It appears #Jaeli has laryngitis. She squeeks like a kid's birthday horn. My #Jaeli, I don't need party sounds for my birthday, just you.
  16. The plan for now is to get #Jaeli better from her infection and a possible pic line placement if it's safe.
  17. MRI showed fat clumping #Jaeli's spinal cord, indicating a tethered cord. It also appears her kidneys are connected.
  18. We'll be here at least another week while #Jaeli finishes her IV antibiotics.
  19. #Jaeli has slept all day. Fever's gone, but they're watching her closely. They think it was a blood infection.
  20. I'm outside the hospital for some fresh air. I've never before seen florescent blue in the sky before, but there it is. #Boston