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pxe

  1. One-on-one, face-to-face conversations with #PXE specialists! Join us at the Sept 2012 meeting! ow.ly/bhVZe #PXE2012 11:00 AM Jun 1st via HootSuite
  2. I uploaded a @YouTube video youtu.be/dqDL-FHj2d4?a PXE Health Challenge: June 10:13 PM May 31st via Google
  3. #Vascular disease in #PXE involves calcification of the elastic layer of small to medium sized arteries. Lean more ow.ly/bfpwU 11:00 AM May 30th via HootSuite
  4. New #Webinar! - Searching for the #ABCC6 #Substrate. Presenter Dr. Koen van de Wetering, June 21 at 2PM EDT. Register ow.ly/b6yry 11:00 AM May 28th via HootSuite
  5. Myth 7-I cannot live a normal life with #PXE. Busted! in Pat Manson's Top 10 PXE Myths ow.ly/b6ynW 11:01 AM May 25th via HootSuite
  6. The extent of #skin involvement in #PXE can vary greatly from individual to individual. Learn more in PXE and the Skin ow.ly/b6nY4 11:00 AM May 23rd via HootSuite
  7. Believe in #openaccess? Then pass the word about access2research.org and sign the petition at ow.ly/b3ABx now. #OAMonday 2:49 PM May 21st via HootSuite
  8. Join PXE International in congratulating our social media manager, Erin Oliphant, upon her graduation today from Sac State! @pxe 11:59 AM May 18th via Twitter for iPhone
  9. Saturday afternoon small group breakouts-lots of time for in-depth discussion. Join us at the Sept #PXE2012 meeting! ow.ly/aZjS8 11:01 AM May 18th via HootSuite
  10. Interested in our conference? Join us and experience a Low Vision session with Wendy Mons! Check out her video #PXE2012 ow.ly/aZjB4 6:16 PM May 17th via HootSuite
  11. Find the latest descriptive & #research materials about #PXE from the databases of #NCBI and other sources. ow.ly/aXfTL 11:01 AM May 16th via HootSuite
  12. Concerned for your unborn baby? #PXE has no known significant effect on the fetus. Learn more in PXE and #Pregnancy ow.ly/aXfGR 10:19 AM May 16th via HootSuite
  13. Myth 8-My #PXE eyes are fragile, so I shouldn't do anything physical. Busted! in Pat Manson's Top 10 PXE Myths ow.ly/aQNjT 11:02 AM May 11th via HootSuite
  14. Doing a fundraiser for PXE International, Jessica found you can always depend on the kindness of monsters ow.ly/aGgzh 11:01 AM May 7th via HootSuite
  15. Four back-to-back sessions on Saturday morning get us all on the same page. Join us at the Sept 2012 meeting! ow.ly/aGgv9 11:00 AM May 4th via HootSuite
  16. European #PXE meeting is underway! ow.ly/i/BsxA 10:15 AM May 3rd via HootSuite
  17. PXE International has compiled a list of Disability and Patient Resources links you may find helpful. Explore them here ow.ly/aELb5 11:10 AM May 2nd via HootSuite
  18. RT @genomebc: 10th annual #Genomics Forum May15. Speakers include Patrick Terry @pxe Registration/agenda ow.ly/aDFhr 10:00 AM May 2nd via HootSuite
  19. Intro to the Genetic Information Nondiscrimination Act [#GINA] and its protections in health insurance and employment ow.ly/aAMAK 11:02 AM Apr 30th via HootSuite
  • Name PXE International
  • Location Washington, DC
  • Web http://www.pxe.org
  • Bio serving those affected by pseudoxanthoma elasticum
171 Following 150 Followers 4 Listed
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