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NYCHemophilia

Make history. Help us make this the biggest hemophilia Walk ever! Go to bit.ly/june3walk. 6:17 AM May 26th via web
Cool new video from HFA Teen Connection. Check it out: youtube.com/watch?v=8lK363… 5:09 PM May 23rd via web
NYC Hemophilia Walk is Sunday 6/3 in Riverside Park - just a month away! Start a team or just walk! Info/register at bit.ly/june3walk. 8:24 AM May 2nd via web
April 17 is World Hemophilia Day. What will it take to close the gap? Learn more at wfh.org. 9:08 PM Apr 15th via web
Thinking about starting a Walk Team? Learn more at a webinar on Monday evening, April 16th. Email info@nyhemophilia.org for details. 10:11 PM Apr 11th via web
Heading to HFA? Saturday advocacy session on "words that work" features NY's Glenn Mones, Colorado's Nathan Wilkes & Maine's Chris Packard. 9:58 PM Mar 28th via web
Lions and tigers and bears - oh my! NYCHC Spring Event at the Bronx Zoo on 4/22. Get more info and tix at nychcatthezoo.eventbrite.com. 8:08 AM Mar 27th via web
New White House vid features the Wilkes family of CO: youtube.com/watch?v=JDNmCq…!. Join Nathan and I at HFA Advocacy Panel on 3/21 in CA. 2:47 PM Mar 22nd via web
As advocates head to Albany, a great piece is out on getting outpatient clotting factor covered under CHP: syracuse.com/news/index.ssf… 9:12 PM Mar 17th via web
Got Walk? Get your page up at hemophilia.org/walk/. 5:43 PM Mar 12th via web
Screening of Bad Blood documentary on 1/31 presented by New York Women in Film and Television. For tickets / info go to nywift.org/article.aspx?i… 1:28 PM Jan 26th via web
New York Times website features five "Patient Voices" from the hemophilia community including NHF CEO Val Bias: Go to nyti.ms/A6qXFR 1:25 PM Jan 26th via web
Make your voice heard!. Washington Days March 7-9; Albany Days March 18-19. More info at hosted.verticalresponse.com/816501/f161151… 9:05 AM Jan 18th via web
NHF Newsletter: NYCHC had biggest 2011 Walk, 4 of 5 top teams and 4 of 5 top fundraisers! Read more at kintera.org/cms.asp?id=282… 3:04 PM Jan 10th via web
Tell your story! Join NYCHC at NHF's Washington Days March 7-9. More info or register at nyhemophilia.org/p/advocacy-upd…. 5:29 PM Jan 8th via web
The new edition of NYCHC Update is out. Annual meeting photos, healthcare reform update and more. View it online at hosted.verticalresponse.com/816501/38eea2f…. 1:01 PM Dec 19th, 2011 via web
Have you seen the Bad Blood documentary? Screening on 1/31 hosted by New York Women in Film and TV. More info at nywift.org/article.aspx?i…. 9:06 PM Dec 14th, 2011 via web
Did you attend NYCHC's Annual Meeting? Let us know what you thought! Answer a brief survey at surveymonkey.com/s/PL652GB. 5:05 PM Dec 8th, 2011 via web
Got tickets? eventbrite.com/event/24279621… 6:48 AM Nov 26th, 2011 via Twitter for iPhone
The November edition of NYCHC Update is out. Gala, research and more. View it at hosted.verticalresponse.com/816501/3eb9df9… or subscribe at nyhemophilia.org. 8:29 AM Nov 21st, 2011 via web

Name NYCHemophiliaChapter
Location New York City
Web http://www.nyhemo...
Bio NYCHC fosters a sense of community among people affected by bleeding disorders in the greater NYC area through shared experiences and mutual support.