LivingwithGP
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Looking and feeling like another ileus. Took my meds and possibly visiting the ER again. Two serious ileus within a little over two weeks.
10:48 PM Dec 2nd, 2011
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Fight Against the AFHA to Keep Cooper Veloudis' Playhouse!
7:18 PM Dec 2nd, 2011
via Twitition
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Missed my ID doc appointment by mixing up the time with another. Surgery on hold until cleared from the ID doc and the back swelling gone.
11:57 PM Dec 1st, 2011
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Tomorrow getting cleared by ID doc for surgery to place the spinal cord neurostimulator. I hope the lump on my back is a simple hematoma.
10:51 PM Nov 30th, 2011
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@ not fun in the least but atleast theyre rushing stuff to get my surgery b4 my sis's wedding, need to get cleared from ID doc 1st
10:43 PM Nov 30th, 2011
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in reply to SarahACox
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Homecare nurse (who I love) informed me that the lump on my back in the area of my last infection is probably an abscess :(
5:43 PM Nov 28th, 2011
via web
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Back home after monitoring a developing second ileus... Still on antibiotics IV until the 27th. Hope everyone enjoys their Thanksgiving Day!
12:23 AM Nov 24th, 2011
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In the ER getting my port looked at.
10:52 PM Nov 21st, 2011
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Back from a long hospital stay but now have a leaking port. I just want one break...
8:33 PM Nov 21st, 2011
via web
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Stuck in the hospital with ileus. NG tube down on continual suction and bowel rest with NPO.
12:57 PM Nov 13th, 2011
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Got back from hospital again. This one showed an increase of liver enzymes. I know it's from tpn, but what happens if they don't come down?
1:25 AM Nov 7th, 2011
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Still recovering with lots of pain and migraines. Husband says I am either convulsing or stop breathing. I am on a 2 week heart monitor now.
10:52 PM Oct 29th, 2011
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Celiac plexus block didn't work. Was going to schedule a stimulator for this week but I suffered a grand mal seiure instead.
12:20 AM Oct 25th, 2011
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Testing continues to figure out my seizure and other worrisome symptoms.
11:35 PM Oct 17th, 2011
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Grand mal seizure - occurred Friday night. Still trying to work with the hospital neurologist to find the reason for it
7:33 PM Oct 13th, 2011
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Had a seizure last night. Doctors don't know why so now I have to watch myself. Last night was terrifying for all and I'd like to not repeat
10:23 PM Oct 8th, 2011
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TAP block tomorrow at 9:30. SO nervous.
7:18 PM Oct 4th, 2011
via web
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Going in for a TAP nerve block next week and I'll find out if a spinal cord stimulator is in my future for pain control.
7:57 PM Sep 25th, 2011
via web
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Iron infusion tomorrow. Hope all goes well.
10:55 PM Sep 15th, 2011
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Therapy tomorrow and iron infusions on Friday. That is, if I don't react like I did to the venofer last time.
9:45 PM Sep 14th, 2011
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- Name Kirby Vuong
- Web http://www.living...
- Bio I'm a 27 year old w/chronic pain & digestive disorders: GERD, Barretts esophagus, GP, CIP, & chronic colonic ileus. I feed through IV w/TPN. I blog about them.
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