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HelpFallyn

  1. We're spreading the word through new venues - check out http://www.carepages.com/carepages/helpfallyn 8:04 PM Jun 15th, 2010 via web
  2. Help us spread Fallyn's story! Vote for her as your favorite in the Extraordinary Measures Quilt. Search for Butterfly Child... #EM 9:41 PM Jan 12th, 2010 via API
  3. Fallyn is HOME- WELCOME HOME, Fallyn! Thank you all for your ongoing support- it is good to be back home. 11:49 AM Oct 17th, 2009 via web
  4. WooHoo!! Fallyn is out of 5D and officially in "outpatient" care! Her numbers are looking good- thank you all for your continued support. 9:18 AM Aug 1st, 2009 via web
  5. The Power Chair is Back! Fallyn can zoom around the halls & is doing great. We've seen a lot of improvements and may be discharged soon! 8:36 PM Jul 21st, 2009 via web
  6. Uploaded some new videos to YouTube recently showing Fallyn walking, etc. Check out YouTube pages HelpFallyn & Frank15642 11:05 PM Jul 20th, 2009 via web
  7. We had some visitors today! Miss Teen USA representatives brightened up Fallyn's day- check out the pictures on her website 10:27 PM Jul 14th, 2009 via web
  8. We have attained double digit success! Day + 10 and 0.2 for a white blood cell count. 7:58 PM Jul 3rd, 2009 via web
  9. We just uploaded Fallyn's video to the site- it looks really great and helps to tell her story. Check it out! 7:40 PM Jun 27th, 2009 via web
  10. 4 days and counting since the BMT and mostly going well 7:40 PM Jun 27th, 2009 via web
  11. The harvest went without a hitch and will grow rapidly and work their magic... more details soon. 7:36 PM Jun 22nd, 2009 via web
  12. The big day. Thanks for your thoughts & prayers 7:09 PM Jun 22nd, 2009 via web
  13. Can't believe that it is already Day -2... 2 more days to go before Fallyn's BMT and then we shall see from there. Keep us in your prayers 10:23 AM Jun 20th, 2009 via web
  14. Day -5 on the countdown to bone marrow transplant day... should be switching up the medication today 8:17 PM Jun 16th, 2009 via web
  15. Making updates to www.HelpFallyn.org and searching for other RDEB/EB groups on Twitter... 8:51 PM Jun 15th, 2009 via web
  16. Day 8 and counting until bone marrow transplant (BMT) day... 2:01 AM Jun 15th, 2009 via web
  • Name HelpFallyn.org
  • Location USA
  • Web http://www.helpfa...
  • Bio Fallyn was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB), now participating in clinical trials to (hopefully) find a cure! See: HelpFallyn.org
7 Following 13 Followers 0 Listed
Vincenzo Scipioni Medscape Pediatrics Rare Diseases Carole Cappetta Paul Martinez MarbleRoad SheilaShelton Gibson