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Get updates via SMS by texting follow FamDys to 40404 in the United States
Codes for other countries

Two-way (sending and receiving) short codes:
Country Code For customers of
Australia
  • 0198089488 Telstra
Canada
  • 21212 (any)
United Kingdom
  • 86444 Vodafone, Orange, 3, O2
Indonesia
  • 89887 AXIS, 3, Telkomsel
Ireland
  • 51210 O2
India
  • 53000 Bharti Airtel, Videocon
Jordan
  • 90903 Zain
New Zealand
  • 8987 Vodafone, Telecom NZ
United States
  • 40404 (any)

FamDys

  1. FD Day 2012 Conference is scheduled for June 10th in NYC. Details, registration at famdys.org/fdday
  2. In Albany to meet with NYS Senators & Assembly members to advocate for FD awareness and funding.
  3. Dates are set for our Bowl-a-thon (March 18th in NY) and "Path to the Cure" bike/walk tour (April 15th in Philadelphia). More details soon!
  4. A happy and healthy New Year to all. Together, we'll make great progress in 2012.
  5. Happy Hanukkah to all. Wishing you the ultimate gift: good health!
  6. Our annual FD Journal campaign is underway. Show you care, submit a page today! www.famdys.org/journal
  7. Thanks Barrie! RT @bifrap1: I'm hosting a Silpada Jewelry Party on 12/1/11 that benefits KESHET and THE DYSAUTONOMIA FOUNDATION!
  8. Walk for FD today! Walk with us or support the walkers: bit.ly/s82FJa
  9. Walk for FD! Sign up now to walk with a great group of people on November 13th in NYC along the Hudson River. bit.ly/vBT5WN
  10. Next week's FD research conference will be the largest-ever gathering of FD experts and researchers. bit.ly/ncpruo
  11. Join the Walk for FD in NYC on Nov 13th. www.famdys.org/walk2011
  12. FD Cycle Tour was great yesterday. Fantastic weather, incredible people. Over $130,000 raised! More photos soon. yfrog.com/nysbetj
  13. FD Cycle Tour is this Sunday. Join us for a great event! Still time to register, sponsor or volunteer. bit.ly/n2KT6q
  14. 6th Annual FD Bowl-a-thon this weekend! - Woodmere, NY - www.famdys.org/bowl2011
  15. NYU Medical Center, home of US's only FD treatment center, press release on NY's Familial Dysautonomia Awareness Day http://bit.ly/eQOlxA
  16. Photos and text of resolution from New York State's FD Awareness Day www.famdys.org/news/NYS-FD-Day2.htm
  17. Tomorrow is Familial Dysautonomia Awareness Day in NY. Spread the word about FD & carrier screening. www.famdys.org/news/NYS-FD-Day.htm
  18. New York State designates Feb 28th as Familial Dysautonomia Awareness Day. www.famdys.org/news/NYS-FD-Day.htm - Please retweet!
  19. Latest edition of FD News is now available http://bit.ly/dMbsl9
  20. New research explains why people with FD have such severe blood pressure problems. Opens the door to new treatments. http://bit.ly/ibBPtj