FamDys
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FD Day 2012 Conference is scheduled for June 10th in NYC. Details, registration at
8:48 AM Apr 26th
via web
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In Albany to meet with NYS Senators & Assembly members to advocate for FD awareness and funding.
5:51 AM Jan 31st
via TweetDeck
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Dates are set for our Bowl-a-thon (March 18th in NY) and "Path to the Cure" bike/walk tour (April 15th in Philadelphia). More details soon!
10:16 AM Jan 19th
via TweetDeck
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A happy and healthy New Year to all. Together, we'll make great progress in 2012.
10:13 AM Dec 30th, 2011
via TweetDeck
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Happy Hanukkah to all. Wishing you the ultimate gift: good health!
5:17 AM Dec 21st, 2011
via TweetDeck
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Our annual FD Journal campaign is underway. Show you care, submit a page today! www.famdys.org/journal
7:21 AM Dec 16th, 2011
via TweetDeck
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Thanks Barrie! RT @: I'm hosting a Silpada Jewelry Party on 12/1/11 that benefits KESHET and THE DYSAUTONOMIA FOUNDATION!
6:42 AM Nov 29th, 2011
via TweetDeck
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Walk for FD today! Walk with us or support the walkers:
3:51 AM Nov 13th, 2011
via TweetDeck
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Walk for FD! Sign up now to walk with a great group of people on November 13th in NYC along the Hudson River.
1:21 PM Oct 31st, 2011
via TweetDeck
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Next week's FD research conference will be the largest-ever gathering of FD experts and researchers.
7:42 AM Oct 20th, 2011
via TweetDeck
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Join the Walk for FD in NYC on Nov 13th. www.famdys.org/walk2011
5:36 AM Oct 19th, 2011
via TweetDeck
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FD Cycle Tour was great yesterday. Fantastic weather, incredible people. Over $130,000 raised! More photos soon.
8:57 AM Sep 19th, 2011
via TweetDeck
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FD Cycle Tour is this Sunday. Join us for a great event! Still time to register, sponsor or volunteer.
3:02 PM Sep 15th, 2011
via TweetDeck
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6th Annual FD Bowl-a-thon this weekend! - Woodmere, NY - www.famdys.org/bowl2011
7:13 AM Mar 14th, 2011
via TweetDeck
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NYU Medical Center, home of US's only FD treatment center, press release on NY's Familial Dysautonomia Awareness Day
4:01 AM Mar 3rd, 2011
via TweetDeck
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Photos and text of resolution from New York State's FD Awareness Day www.famdys.org/news/NYS-FD-Day2.htm
10:22 AM Mar 2nd, 2011
via TweetDeck
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Tomorrow is Familial Dysautonomia Awareness Day in NY. Spread the word about FD & carrier screening. www.famdys.org/news/NYS-FD-Day.htm
7:13 AM Feb 27th, 2011
via TweetDeck
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New York State designates Feb 28th as Familial Dysautonomia Awareness Day. www.famdys.org/news/NYS-FD-Day.htm - Please retweet!
2:17 PM Feb 17th, 2011
via TweetDeck
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Latest edition of FD News is now available
8:00 AM Dec 6th, 2010
via TweetDeck
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New research explains why people with FD have such severe blood pressure problems. Opens the door to new treatments.
12:25 PM Dec 1st, 2010
via TweetDeck
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- Name FD Foundation
- Location New York
- Web http://www.famdys...
- Bio The Dysautonomia Foundation - research and treatment for people with familial dysautonomia (FD)
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