CystinosisIrl
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Well done to the McCauley family & friends who took part in the Belfast Marathon on 7 May 12 raising loads of money for cystinosis research
5:56 AM May 19th
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Our call for resarch projects under the MRCG/HRB joint funding scheme 2012 now open. for more details
9:34 AM Nov 25th, 2011
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Our Research Symposium will be streamed live tomorrow from 2pm Irish time. Our website has details how to access this
7:06 AM Oct 12th, 2011
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All welcome to 1st Cystinosis Research Mtg at Conway Institute UCD, 13 October, 2-6. For more details: www.cystinosis.ie
Why not join us?
5:50 AM Oct 2nd, 2011
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The team are here, bikes collected & race officially launched by the Mayor of the City of Galway, Hildegarde Naughton
2:07 PM Sep 15th, 2011
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Getting ready to welcome 12 cyclists frm UK, arrive Thurs & travel Galway-Dublin to fundraise for cystinosis research
1:18 PM Sep 12th, 2011
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12 cyclists, coast-coast Galway to Dublin, 16/17 Sept in aid of cystinosis research. If you see them en route, pls cheer them on!
8:57 AM Sep 7th, 2011
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Test/run
8:51 AM Sep 7th, 2011
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Don't forget Ladies, register for the Mini Marathon on www.florawomensminimarathon.ie before registration closes. Demand is high this year
6:49 AM Apr 7th, 2011
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It's Organ Donor Awareness Week from 2-9 April. If you have a smartphone you can download a donor card from the App Store: Organ Donor ECard
8:43 AM Mar 30th, 2011
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Today we are launching Cystinosis Foundation Ireland's twitter page. Welcome everyone!
6:47 AM Mar 23rd, 2011
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- Name Cystinosis Ireland
- Location Ireland
- Web http://www.cystin...
- Bio All volunteer Irish registered charity dedicated to fundraising to support research into the ultra rare disease cystinosis. One day we will find a cure
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