Get short, timely messages from Cystinosis Ireland.

Twitter is a rich source of instantly updated information. It's easy to stay updated on an incredibly wide variety of topics. Join today and follow @CystinosisIrl.

Get updates via SMS by texting follow CystinosisIrl to 40404 in the United States
Codes for other countries

Two-way (sending and receiving) short codes:
Country Code For customers of
Australia
  • 0198089488 Telstra
Canada
  • 21212 (any)
United Kingdom
  • 86444 Vodafone, Orange, 3, O2
Indonesia
  • 89887 AXIS, 3, Telkomsel
Ireland
  • 51210 O2
India
  • 53000 Bharti Airtel, Videocon
Jordan
  • 90903 Zain
New Zealand
  • 8987 Vodafone, Telecom NZ
United States
  • 40404 (any)

CystinosisIrl

  1. Well done to the McCauley family & friends who took part in the Belfast Marathon on 7 May 12 raising loads of money for cystinosis research
  2. Our call for resarch projects under the MRCG/HRB joint funding scheme 2012 now open. cystinosis.ie for more details
  3. Our Research Symposium will be streamed live tomorrow from 2pm Irish time. Our website cystinosis.ie has details how to access this
  4. All welcome to 1st Cystinosis Research Mtg at Conway Institute UCD, 13 October, 2-6. For more details: www.cystinosis.ie Why not join us?
  5. The team are here, bikes collected & race officially launched by the Mayor of the City of Galway, Hildegarde Naughton twitter.com/CystinosisIrl/…
  6. Getting ready to welcome 12 cyclists frm UK, arrive Thurs & travel Galway-Dublin to fundraise for cystinosis research
  7. 12 cyclists, coast-coast Galway to Dublin, 16/17 Sept in aid of cystinosis research. If you see them en route, pls cheer them on!
  8. Test/run
  9. Don't forget Ladies, register for the Mini Marathon on www.florawomensminimarathon.ie before registration closes. Demand is high this year
  10. It's Organ Donor Awareness Week from 2-9 April. If you have a smartphone you can download a donor card from the App Store: Organ Donor ECard
  11. Today we are launching Cystinosis Foundation Ireland's twitter page. Welcome everyone!