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  1. If you were at the CJD Family Conference: http://bit.ly/ZGbeJ 7:53 PM Jul 23rd from web
  2. @BabushkaBlue interesting idea...you never know. 6:36 AM Jun 28th from Tweetie in reply to BabushkaBlue
  3. blog post about this new copper find! http://curecjd.wordpress.com/ 6:20 PM Jun 25th from web
  4. Actually, I guess I should ask if LACK OF COPPER is the trigger? #CJD #fCJD 6:13 PM Jun 25th from web
  5. I know that was gratuitous, but I do have a 50/50 shot of dying of #CJD #fCJD 6:12 PM Jun 25th from web
  6. Can this save my life? Copper? Is copper the trigger? http://bit.ly/gWb8z #CJD #fCJD 6:11 PM Jun 25th from web
  7. Congratulations, @PrionGIrl and the rest of U of Alberta on receiving the $1.6 million in funding! http://www.cbc.ca/health/st... ... 7:31 PM Jun 17th from Nambu
  8. KFC uses beef in its grilled "chicken." interesting for those who prefer to cut it out of their diet: http://www.walletpop.com/bl... ... 7:22 PM Jun 17th from Nambu
  9. someone found me and emailed questions about fCJD today. that's always pretty cool. the power of the Internet... 2:36 PM Jun 17th from Nambu
  10. why a CJD blog? Why Curecjd.org? why be so open? http://bit.ly/cjq5N 4:32 PM Jun 16th from Nambu
  11. thanks for bearing with my while i attempt to deal with mortality. again. http://bit.ly/10VAoh 7:16 PM Jun 13th from Nambu
  12. WWYD if you didn't have long to live? I've been asking. More: http://bit.ly/iro32 3:58 PM Jun 11th from Nambu
  13. @UCSFmac no, thank YOU! and you're welcome of course. I am a fan of yours. 2:41 PM Jun 11th from Nambu in reply to UCSFmac
  14. @PrionGirl twitter may not work to educate the public about CJD, if only because tweets are too short for a complicated subject. 2:41 PM Jun 11th from Nambu in reply to PrionGirl
  15. @PrionGirl I haven't been to the conference yet. for many reasons. but airfare is so cheap right now... 2:40 PM Jun 11th from Nambu in reply to PrionGirl
  16. still pondering what to do with my life if i only live for 10-20 more years. wonder if everyone with fCJD in their family thinks like this? 2:39 PM Jun 11th from Nambu
  17. what if you only had so many years to live and you knew it? http://curecjd.wordpress.co... 10:33 PM Jun 10th from Nambu
  18. astonished. read a story about a 54 yo man in Wisconsin today who just died of CJD. that is too young. 8:13 PM Jun 10th from Nambu
  19. this is the winner. best wordpress theme yet for CureCJD: http://curecjd.wordpress.com/ 8:13 PM Jun 10th from Nambu
  20. reconsidering: may attend the CJD Family Conference after all...not sure yet. 5:57 PM Jun 10th from Nambu
  • Name curecjd
  • Location Phoenix, Arizona, USA
  • Web http://curecjd.wo...
  • Bio I believe in a CURE for CJD
21 Following 24 Followers 0 Listed
Donna Teixeira All-Natural Desserts Andrew Rose Brian Appleby Brian Appleby Catherine Lady Naylon spetz72 UCSF MAC Albert Lineses III ana Leon Trujillo leah prusiner Jay Ingram Valerie Sim InternQueen Graham Steel Jean Jaminet marintodc Stephanie Danny Brown